← Return to Has anyone really gotten over CIDP?

Discussion

Has anyone really gotten over CIDP?

Autoimmune Diseases | Last Active: 1 day ago | Replies (49)
Comment receiving replies
@dlydailyhope

@kgitti
How were you diagnosed with CIDP? Did they confirm with a spinal tap? I am seeing a new neurologist end of April and will ask for EMG/nerve conduction testing, brain MRI, etc. I have read that a spinal tap is needed to confirm CIDP. My arms/hands/legs/feet and hips are so weak and it is hard to stand, walk, sit for very long. I also have balance issues and dizziness plus vision issues and confusion/memory/concentration issues.

Jump to this post

Replies to "@kgitti How were you diagnosed with CIDP? Did they confirm with a spinal tap? I am..."
kgitti | @kgitti | Apr 4 9:50am

Yes I had the positive spinal tap, numerous mri’s to rule out spinal problems MS ETC. and positive nerve conduction study plus positives on GM1 GANGLIOSIDE AB PANEL for GBS variants. Plus the definitive test copied below for peripheral axonal neuropathy variant. Note it is from St. Louis MS., Washington Medical School. I did not have to travel there. The only place I know it is done maybe. It was the final smoking gun. I do not have pain just weakness, sensory loss etc.

VIEW AND REPLY