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High or Fluctuating Chromogranin A Level: What does it mean?

Neuroendocrine Tumors (NETs) | Last Active: Jun 18 3:39pm | Replies (184)
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@anxious88

@emilyliz16 I am in the same boat right now. I was checking my hormones and my CgA came back 200 (upper limit 100). How you doing? I am really stressed

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Teresa, Volunteer Mentor | @hopeful33250 | Apr 4 7:17am

Hello @anxious88 and welcome to the NETs support group on Mayo Connect. I'm glad that you found this forum. From your post, I see that you are concerned about the elevated CgA numbers. Please know that CgA levels can be elevated due to many reasons. Other health factors, as well as medications can raise the CgA levels. By way of example, my CgA numbers are usually in the upper 300's but there does not appear to be any new NETs.

I look forward to learning more about you. As this is your first post, please share as you are comfortable doing so, I bit about the reason for the CgA test. Have you had a diagnosis of NETs/carcinoids? What symptoms are you currently experiencing?

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anxious88 | @anxious88 | Apr 19 2:54pm

Hey! I repeat my CgA levels yesterday, waiting for results.
I have a PET DOTATOC scheduled for next friday.
I read you were taking PPIs? Those can rise your CgA levels.
I do not take any meds but I did no fast before the blood test. Could it elevate to 200 my levels?
My anxiety is on the roof!!!

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