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Post covid neuropathy/bfs?

Neuropathy | Last Active: Nov 5 12:16pm | Replies (60)

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@mikenewyork24

I have been dealing with the same symptoms since August 2023. Started with muscle fasciculations all over my body. I also have hand tremors as well. I have had several emg's by 3 different neurologists and they have all come back saying BFS. Recently, I am getting muscle pain which I have not had before. All blood work is normal and I strongly believe it was initially started with my Moderna shot in May 2021 and symptoms started to progress each month. I caught Covid in May 2022 and believe the combination of vax and covid put my nervous system into over drive. All doctors have said it's anxiety but I am not buying it. Have you found any relief or have symptoms changed for you since your last post?

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Replies to "I have been dealing with the same symptoms since August 2023. Started with muscle fasciculations all..."

I had a similar experience. My post Covid syndrome started September 2023. I relate to so many symptoms you listed and those found on this thread. Plus, smell/taste disorder, which is currently the most disturbing. I also have type 1 diabetes, which adds another layer of aggravation. Just wanted to add that my neurologist said I didn’t have neuropathy (referred for diabetic neuropathy, but also for smell/taste by ENT), despite tingling in hands and feet, plus numbness in feet and burning. Symptoms started after covid, also body wide fasciculations, adrenaline rushes, phlegm in throat, rashes, insomnia, congestion and burning throat. NOTE: I had a Vitamin b12 deficiency as well, that was treated and resolved April 2023. Did that contribute? Has anyone had vitamin deficiencies checked?

At this point, I really don’t know what caused the symptoms. What I did experience was a disappearance of the twitches. Burning spots 98% gone. Tingling gone. And foot numbness almost gone. Sadly, my smell/test disorder remains though.

So, if the LC caused neuropathy, how can it improve? Or, maybe something else caused it. It’s confusing. I’m very grateful. I tried Gabapentin, but couldn’t take due to vision side effect. I engage in daily exercise, good diet and vitamins/supplements. Oh, and talk therapy. This ordeal has been extremely stressful! Most people have no idea how it can impact your life.