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More frequent and intense "ice pick" pains. Normal?

Brain Tumor | Last Active: Apr 9 7:13am | Replies (4)
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@colleenyoung

@mimispree, I can imagine that you're concerned about side effect getting more and more intense. It certainly warrants further investigation. Have you talked with your doctor about it? Are you still being followed by your neurosurgeon or by your PCP?

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Replies to "@mimispree, I can imagine that you're concerned about side effect getting more and more intense. It..."
mimispree | @mimispree | Apr 4 1:21pm

Thank you for your reply. Unfortunately, I could only afford one MRI at five-years post resection: I couldn't get insurance for two years, and I had a graft surgery for my facial paralysis where the surgeon left a sponge inside me; and due to my vertigo I took a bad fall that required surgery. These events cleared out what savings I had left.

I did find out at that 5-year MRI, that there are two small tumors still on my brain stem.

I wonder if it's growing because when I move my head, I have pain at the tumor site. I guess that's to be expected.

I cannot and will not have anymore surgery, so I haven't seen the value of getting another MRI. Because of this, my surgeon isn't willing to consult with me.

I accept that, but the attacks are disconcerting and I wish someone would tell me what I can expect. No one will answer that question. I feel I am being punished because I have opted not to have surgery again. But after almost four months away from home because of a botched surgery, facial paralysis, and several ripple effect surgeries, I'm done.

Can you direct me towards any information as to the path I'm on?

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