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Sjogrens, SFN, unbalanced walking, nystagmus

Autoimmune Diseases | Last Active: Jul 7 9:59am | Replies (25)
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@suetex

My neurologist would certainly say it's a possibility. I'm not going to try to diagnose you but obviously, someone does. Try a new rheummy that has Sjogren's experience. I will post when I know the Rituximab works. I start this Tues. And there is another monoclonal in the works that works on a different part of the immune reaction. I've got that in my sights, too. Hang in there and be the squeeky wheel. It pays off. Our thoughts are with you.

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Replies to "My neurologist would certainly say it's a possibility. I'm not going to try to diagnose you..."
j77 | @j77 | Apr 3 4:48pm

Thankyou for responding!I think it had to have been the iron infusion or possibly covid.I am sure the years of anemia from the heavy periods wore my body down too.It seems like alot of diseases can come on from low iron too.I have to try to find a Rhuematologist that treats seronegative cases.It took 20 years for them to diagnose my mom's Lupus.I just wonder if I have had another autoimmune disease and it took the iron infusion to really set it off.It is so crazy going from Healthy to your whole body not functioning and the specialists can't really find anything.

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cantek | @cantek | Apr 4 5:54pm

I would be very interested in how you do on Rituximab.
I have failed to wean off of Prednisone 3 times while on Imuran and Mayo recommended Rituximab.
My Rheum thinks the last flair was due to a subclinical UTI so we shall see. Im going down 1 mh every two weeks and will be at 6 mgs next week.
Ive read that patients have gone into full remission on Rituximab!

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