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Treatment options that have worked for Small Fiber Neuropathy
Neuropathy | Last Active: Apr 20 2:04pm | Replies (106)Comment receiving replies
I was diagnosed with sfn and sensory polyneuropathy in February of this year by an emg and nerve conduction test, although the neuropathy in my legs has been present for years. I’m now experiencing numbness and tingling in both feet and sometimes in my hands. I’m also having trouble walking straight. I must look like I’m drunk. Is this consistent with sfn? I don’t see the neurologist until May and I’m very concerned that I may get worse by then.
Replies to "I was diagnosed with sfn and sensory polyneuropathy in February of this year by an emg..."
Good evening, @twinkie23; in your first sentence, you say you were diagnosed with SFN (small fiber neuropathy) just a month or so recently. Just to get a headstart, may I ask if your diagnosis was based on the results of a skin biopsy that may have been done on your ankle tissue? This test determines what percentage of your nerve cells are working as they are supposed to. For example, my score was .09. That kind of tells me that not much is going on down there.
At the time of the test, I was beginning to notice some tingling in my toes and heels. It wasn't too long before the pain began. At this point, I have very little feeling in my feet. In addition, I have sharp pain in my right heel that is out-shouting the everyday tingle tangles.
About two years ago, I began to worry about driving with these recurrent symptoms. At the time, I had an MFR (myofascial release therapy) session once a week to make sure my nerves were awakened and ready to do their job.
Now......I have two sessions of MFR a week with two MFR therapists attending. Both of them work hard to relieve the SFN issues on my feet. Then one therapist moves to my hands which have been introduced to the numbness of SFN as well as freezing cold.
One of the therapists uses her fingers as if she had a reflexology instrument or Zone therapy issue to resolve. Although the twice-a-week sessions help considerably, I realize now that there is no current medication or assistant therapy that can bring my hands and feet back to normal.
I would like to introduce you to @jenniferhunter. She has created an entire Connect discussion for MFR and can be very helpful. While you are waiting for her to read this post, you may benefit from reading the MFR discussion.
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
May you be safe, protected and free from inner and outer harm.
Chris
Same symptoms, the only thing that has helped me is exercising. With some massage that will warm up my legs muscles and
Prednisone of 60 mgs that was prescribed at my crisis. Now I'm at 10 mgs. Look for a neuromuscular specialist, and take exercising very seriously. I do it every day and it has taken me out of the disease.
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Yes it is consistent…exercise,walking, self massages of legs and feet help.I am going to try the Accelera device. Balance is a issue..balance exercises help and getting more blood to the brain. This does not go away but you can slow it down.