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@hopefullibrarian

Minutes before I noticed this new discussion, I was saying to my husband what a hurdle it's been for me just understanding the role that each medical specialty plays in treating OP. Joining this support group helped me get over that hurdle. (Thanks everyone!) I'm very happy with the specialists I found, and the treatment I'm getting.
@stacibw I can empathize about how overwhelming it is. You really are fortunate to have that appointment scheduled with the Mayo. While you wait, if you can get a consultation with Dr. McCormick, that may be both reassuring, and good preparation for your appointment in July.
In the meantime, keep learning about OP, and advocating for yourself. You're on the right track!

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Replies to "Minutes before I noticed this new discussion, I was saying to my husband what a hurdle..."

After writing my previous comment, I saw one by @bluebonnet242. She's been trying to get an appointment with Dr. McCormick, and he's booked out until June. You can read her comment here: https://connect.mayoclinic.org/comment/1043669/
His opinion is highly sought after, so it may still be worth getting a consult even if it's after your appointment at the Mayo. He can't order tests, or prescribe meds. Instead, he can give you guidance, and if your doctor/s willing, he'll work with them to plan the best treatment for you.

I would do that too. I just made my appointment about a week ago and got the appointment I for May 15. So, you will have to wait, but you'll get it before July. Look up Dr. Keith McCormick and look at his website and find the list of all the labs he will order if you need them. Most Medical MD's will not do this. Why? I have no idea. They just don't know. My doc told me that my magnesium is fine. It's not. You have to get a "red blood cell" test to determine. Not a regular blood test that the medical doc will give you. It's very frustrating and sometimes I just feel like crying because you have to beg for information. You have to be your best advocate. That is for sure. Start with Dr. McCormick.