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Leiomyosarcoma from thoracic spine with bone involvement

Sarcoma | Last Active: Apr 10 8:24am | Replies (11)

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@elcee

I am getting gemcitabine one week, and the next week I get gemcitabine plus doxcetaxal. The week afyer thay I am off. I get zofran to prevent nausea both weeks before chemo and the week i get two kinds i also get decadron and onpro to build up my wbc's. I get extremely tired and my RBC's are dropping so once in a while I take an extra week off if I need to ferl better to visit family or something. The cimbination is a more aggresive routine. I am Blessed as I have had 2 CT scans and the tumors in my liver are actually shrinking whixh I have been told does not happen for everyone. The tumor in my right clavicle is staying the sane size which they say us good as the chemo cant penetrate the bone like it can the soft tissues. I partiasly attribute this to "prayer therapy" as I have lots of friends praying for me too.

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Replies to "I am getting gemcitabine one week, and the next week I get gemcitabine plus doxcetaxal. The..."

Hi elcee,

My name is Michael and I was officially diagnosed with this rare cancer in early February when the pathology report came back to me. I had a major back surgery (laminectomy from T-4-T-7) on Jan 26th and the recovery process was brutal. I was partially paralyzed due to severe spinal cord compression from the tumor prior to surgery. My back still aches and I suffered from an incomplete spinal cord injury from the damage the tumor had done to my spinal cord. I cannot jog or run any longer or at least for the time being unless it gets better in time. I am currently in physical therapy and I will soon start proton radiation for many weeks ahead and when I am done with that, I will begin the MAI chemotherapy treatment for at least 3 months. I do wish you all the best though and I will keep you in my prayers.