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Sjogrens, SFN, unbalanced walking, nystagmus
Autoimmune Diseases | Last Active: Jul 7 9:59am | Replies (25)Comment receiving replies
Hello!I just read your post because I am trying to figure out what happened to me and if I have Sjogren's.Do you think it is possible a bad reaction to an iron infusion could Bring it on?I had a one time dose of 1020 mg for heavy periods for years.I had a reaction days later and can barely walk now.I have extremely dry painful eyes with blurry vision and floaters that can't be in the sun.I also have extreme muscle weakness all throughout my body.I have had several positive ANA's,but the Rhuematologists tell me it is not autoimmune.I have had thryoid disease for years and Lupus runs on both sides of my Family.The neurologist I am seeing us very confused because he has not seen anything like it.I know the muscles are definitely involved.I could not swallow or eat at all at the very beginning and my primary thought to give me steroids which gave me the ability to eat again.
Replies to "Hello!I just read your post because I am trying to figure out what happened to me..."
My neurologist would certainly say it's a possibility. I'm not going to try to diagnose you but obviously, someone does. Try a new rheummy that has Sjogren's experience. I will post when I know the Rituximab works. I start this Tues. And there is another monoclonal in the works that works on a different part of the immune reaction. I've got that in my sights, too. Hang in there and be the squeeky wheel. It pays off. Our thoughts are with you.
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@j77 I’m so sorry that you’re going through this, and have been for quite some time. I can’t even imagine how frustrated you must be. If you would be interested in going to the Mayo Clinic, here is a link for appointments: https://mayocl.in/1mtmR63.
Do you think a possible appointment would help you?