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No Relief Ever and Pain Increasing; How Do You Stand It?
My husband has chronic pain, and has had since his teens. (He is 62 now.) About 3 years ago he developed pain in his "sit bone" (ischial tuberosity) that has been steadily getting worse. Drugs don't touch it. Abbott's dorsal pain stimulator had no effect. Cortisone shots do nothing. (The lidocaine or whatever it is that accompanies cortisone shots gave an hour of relief.) He can't sit in a car or a plane for more than an hour without severe pain. He was a kayak racer, and loved it, but that's over. He can't ride his beloved bike anymore. We can walk about a mile or so, no more. They can't do nerve ablation. His pain doctor told him that perhaps a bursectomy might help, which is something we are investigating, but the pain specialist and neurologist have essentially said that they can't do any more for him. And so far, we have been unable to find an orthopedic surgeon who does this procedure.
And the pain just keeps getting worse. He's having problems sitting, so he's spending more time lying down. That's beginning to hurt too much too.
What does he do when it becomes unendurable?
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Thank you so much for this info! I have CRPS that has advanced recently & I can't find anyone who can do anything at this point but I've never been to a chiropractor. I've always been afraid because of the CRPS but I guess I need to start looking. I really appreciate it!
I found a negative review about a chiro NC clinic from someone on fb with CRPS. I contacted her an she said "waste of time" but they have good reviews too?
Whoever it is ask "do you know what CRPS is?" No? See ya. Same with PT. I go to PT 2ce week and they say PT is good treatment for CRPS. Not really anything they can do except help with whatever else is thrown off by limping, for me, my back spasms (back surgery caused my crps and still an issue 45 years later.) Watch the two MD experts on Youtube. I font get dragged into the ones pushing SCS. The two expert experts say NO! I believe them.
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1 ReactionBest for spasms:
B-Caryophyllene is the only Terpene that can activate CB2 receptors within the Endocannabinoid system.
9-Thca suppresses spasms
9-Thc
Spasticity- cbd, cbg, cbn, thc, Thca
Pain
Myrcene
Limonene
Lina look
Alpha Humulene
Beta-caryophyllene These are the major components needed to relieve spasms and pain. However the best combination of the cbd/th c is found in a medical liscensed despensary. However, Charlotte’s Web , Lazarus, CBD MD and others offer great products. It took me two years to find the ones that worked for me. I prefer capsules and tinctures from Surterra that are already measured and they have a wide variety. Back to medication and supplements: I take 600 mg of NA R Alpha Lipoic Acid from Immunovites. 1000 mg of turmeric root Extract -95 # curcuminoids and black pepper from ME First Living. I also take 5-325 mg hydrocodiacetam 3x a day. I can’t take the other meds that help with nerve pain. However I can tolerate memantine 10 mg bid which is wonderful for nerve pain. Then I use far infared devices for my legs, foot, knees. I also like my large Nikon magnet for my back. I hope this helps.
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2 ReactionsYour husband should try acupuncture!
I did for several months but it didn’t address the whole body nerve pain. I also did kinesiology, reiki as I am a reiki master teacher, nutrition supplements (BA in Holistic Nutrition, guided imaging, CBT, I’m a ACSW, and hypnosis as I also hold credentials in Ericksonian hypnotherapy. I’ve even written pain management programs for doctors. When one has the entire branch of nerves cut at T-9-10 it creates havoc with the entire body setting in motion the fibromyalgia and polymyalgia, and chronic spreading of crow and progressive polyneuropathy. I’m always seeking ways to quiet the constant electrical surges, contractions, and constant spasms in my legs. I also like to educate others on my findings.
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1 ReactionWould you elaborate more on the magnet therapy you use? What brand or type? I feel it may help me. Thanks!
Do you exercise regularly with your own home exercise program? I have found that using my muscles has provided me increased benefit of decreased pain and decreased episodes of night spasms in my legs and feet.
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1 ReactionI had serious muscle spasms after one of my back surgeries. To stop taking crappy pain meds I smoke pot and that works great.
I had chronic pain when the small fibres in my feet were badly damaged…, not cut. I had a ketamine drip and amazingly the pain disappeared after 3 hours on the drip. I had the drip for 6 days. Amazingly wonderful. I still had burning feet and ketamine didn’t work for that but it has since gone because of my treatment . The pain hasn’t come back and I’m very fortunate as my small nerves have healed in one foot and the other foot has almost recovery fully. I am very very fortunate.
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4 ReactionsHe is going to have to find a doctor who will prescribe the correct medications. Lyrica Cymbalta, and an antidepressant like Wellbutrin together with my spinal stimulator work for my sitting pain which was debilitating and kept me in bed as well. Now I’m up and about. None of these things by themselves worked for me but together they do the job. Good luck to you.
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