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howardjames (@howardjames)

Cerebellum Brain Atrophy

Stroke & Cerebrovascular Diseases | Last Active: May 25 11:28am | Replies (206)

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@chiefsfan75

Unfortunately she isn’t and now they are saying they aren’t going to do the ivig treatments because she wasn’t improving enough. She is now unable to walk at all and her speech is getting worse. We have actually reached out to Mayo Clinic in Minnesota and need to request her medical records before they can move forward 😰😰

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Replies to "Unfortunately she isn’t and now they are saying they aren’t going to do the ivig treatments..."

I am so sorry to hear that your granddaughter has not improved, @chiefsfan75. It is too bad that her current doctors do not consider it beneficial for her to have the IVIG treatments. What is her age and when did her symptoms begin?

I am glad to see that you are reaching out to Mayo. I hope that you hear some encouraging news on that front.

Will you post again and let me know if she is able to be seen at Mayo?