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Benign fasciculation syndrome (BFS)

Brain & Nervous System | Last Active: 5 days ago | Replies (359)

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@captainanxiety8

Didn't think this thread would go this long. I started the initial post over five years ago. I'm still twitching, not as awful as it was when it first started. No weakness or loss of ability thankfully. If I go by what I've read online, I should be clear of anything serious. I still see a neurologist once every 6 months, more for peace of mind. If I get a hotspot, I take Clonotril(Clonazepam) 0.5mg in the evening before bed for a few nights and the hotspot goes away. Whatever this is, it's a curse that will likely never go away, which makes me deeply sad. But I've learned to live with it and have a few ways to mitigate it when it gets really bad. The Reddit forum helped me a lot through this.

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Replies to "Didn't think this thread would go this long. I started the initial post over five years..."

Can you elaborate on the hot spot? I had that too, eventually joined by BFS! Neurologist ruled out neuropathy and ALS. Also, prescribed Clonazepam!

I am happy its till going!! Going on 2 years for me but like you not nearly as bad...diet and exercise has helped alot and just accepting it.

I'm somewhat in the same boat. It's been almost 2 years and the first 2-3 months were the worst. I've recently had this month or so long flare up in my upper stomach that twitches 30+ times a day. When I get that, it makes me nervous, but have mostly just learned to live with it as nothing really works. While it sucks, I'm glad to know there are others out there who can be supportive.