Undecided choice of drugs for Osteoporosis
I am 80 years old women and have borderline osteoporosis which affects my entire body. My doctor wants me to take Prolia and the Rheumatologist wants me to take Reclast. I’m unhappy with both choices as the side effects are great and I do not tolerate new drugs well. I am very undecided and am considering doing not taking annty drugs for this condition. I have never had a fracture and I’m very active Any opinions or advice.
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Thinking of you and so hear you on quality of life! My breast cancer drugs after only one year put me deep into osteoporosis at 58 yrs old. I was terrified of the side effects but my endocrinologist at MGH said it was imperative and I just started with Fosamax. I've only take in twice (one pill weekly) and I have been waking around 3am with a painful heaviness in my legs down to ankles and not sure what to make of it? Apparently Fosamax and Reclast IV might help repair bones to perhaps avoid cancer metastases. Can you share your Fosamax side effects? xoxo
Thinking of you and hoping you could share your "collagen" as so confusing!!!
I also was told the effect of inhaled steroids was not systemic, but only restricted to the lungs. 9 years later I had my first Dexa scan and found out I have advanced osteoporosis! When I discussed the impact on my bones with my pulmonologist he said, “ Do you want to live?”
So now, like many of the rest of you, I’m reading about all these scary side effects from the osteoporosis drugs. My doctor is starting me on Evenity.
Mine asked me if I wanted to keep breathing when I started everyday inhaled steroids. Guess what, the way I had used them before worked! Using everyday didn’t change lungs, but ruined bones. And, they are prescribed differently now.
Inhaled steroids are mentioned as causing problrms in the Coltan’s micronutrient deficiencies book, recommended by Dr. Lucas,
jkesparza, when you say "they are prescribed differently now," can you eplain? I am still using every day & now my bones are bad.
My doctor now has me use inhaled steroids on an as needed basis, if I have an upper respiratory infection, or if something triggers my asthma. I’ll use a loading dose-several puffs of a higher dose, first day, then normal dose for a few days, then low dose for a couple of days after chest clears. I rarely use nasal steroids anymore, just use saline daily.
Can someone let me know the titles of the books pedsnurse61 refers to?
To jkesparza, I don't think I made that comment re inhaled steroids being prescribed differently now. I have bee taking AdvairHFA for COPD for years & nothing has changed.
I had my first meeting with my UW Endocrinologist today. All went well until she said she wanted to put me on Reclast to start with & I shared my feelimgs about that, so it was dropped. We ended with a recommendation for Prolia which I felt ok with. The problem with Prolia's failure to prevent bad bone loss upon discontinuing would be addressed by simply staying on it since I am 86.
Thoughts?