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@pfrances

Newbie here, hello all.

I have not been diagnosed with PC, but am monitoring for increasing dilation (main duct and bile duct). Most recent MRI showed the appearance of "tiny" cysts in the pancreas, largest 4mm, apparently not on previous imaging. Doctor says the cysts are of less concern than the dilations and is not yet recommending repeat EUS (last one December 2023). CA19-9 at 17. Other data, hyperkinetic gallbladder: 96%EF on HIDA.

Best thing so far for my symptoms was moving to low-fat diet last fall. Now I wonder what else I can do to 1) support my organs and/or 2) help identify source of dysfunction: Sphincter of Oddi? Ampulla of Vater? For example, after reading that caffeine can affect the SO, I am cutting back on coffee/tea.

Much appreciate any input on other diagnostics to pursue, ways I can be proactive, or things you have learned about working with doctors and the system overall.

Thanks and best wishes to everyone. Very glad to have found this group.

pf

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Replies to "Newbie here, hello all. I have not been diagnosed with PC, but am monitoring for increasing..."

Welcome, @pfrances. to help you on your pursuit to monitor the pancreatic dilation, here are a few discussions that may be helpful.
- Dilated pancreatic duct: What to do?
https://connect.mayoclinic.org/discussion/4mm-dilated-duct-pancreas/

- Sphincter of Oddi Dysfunction: What helps you?
https://connect.mayoclinic.org/discussion/i-have-sphincter-of-oddi-dysfuncfion-it-causes-severe-upper-abdominal-pain/

See more discussions using the group search: https://connect.mayoclinic.org/group/pancreatic-cancer/?search=dialation&index=discussions

How often are you being monitored?