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Atypical Ductal Hyperplasia AND Invasive Lobular Carcinoma

Breast Cancer | Last Active: Apr 5 8:40pm | Replies (34)
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@mymedicalmystery

Hi. I am new to the group. I do not have cancer but was diagnosed about four years ago with atypical Lobular Hyperplasia. My doctor has been recommending monitoring every six months. Mammogram then MRI. Is this the best way? It is hard not to be nervous every six months but I try not to be. Did anyone else do this?

Any information on Atypical Lobular Hyperplasia would be helpful. Thanks

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Replies to "Hi. I am new to the group. I do not have cancer but was diagnosed about..."
fronterae | @fronterae | Apr 3 8:37am

Hi @mymedicalmystery, I was diagnosed with ALH in December 2022 after a biopsy and then confirmed with an excisional biopsy. My doctor did a genetic testing( I’m negative). Because it is not cancer they recommended monitoring every 6 months with MRI and mammograms, because I’m considered a high risk patient. They sent me to an oncologist and she recommended me tamoxifen. I’m not using the tamoxifen because all the side effects.
Last August 2023 I had two other biopsies with the same diagnostic.
I had a second opinion and the doctor told the same.
Every time I go for a mammogram or mri is very stressful.

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Colleen Young, Connect Director | @colleenyoung | Apr 5 8:40pm

@mymedicalmystery, I add my welcome to @fronterae's helpful reply. You will find several discussions where members are talking specifically about atypical lobular hyperplasia (ALH), like this one:
- Atypical lobular hyperplasia: Did you have surgery?
https://connect.mayoclinic.org/discussion/atypical-lobular-hyperplasia/

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