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MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Replies to "I was diagnosed with MAC a year ago. Other than shortness of breath I have no..."
I am 70 years old and diagnosed with MAC 6 months ago. Started Azithromycin, Ethambutol and Rifampin 4 months ago. I wanted to take the antibiotics and clear out the infection, since I had pneumonia twice. It hasn't been too bad. Diarrhea in the morning, which I take psyllium seed capsules (20 throughout the day.) Please place your own needs and desires front and center during this decision.
I am 77 and was diagnosed with the same 2 years ago. I was put on the big 3 (Azithromycin, Rifampin and Ethambutol). I had the nausea, diahrea and loss of appetite but it didn't last more than a few months. I was lucky I never got fatigue. I was taken off Ethambutol because of eye problems which corrected itself after off the med for 3 months. I was put on Arikacye for 8 months buy taken off because of terrible cough and shortness of breath. They are now trying Nuzyra which I start in 2 days. Everyone is different in reactions to the medications but It is definetly worth going on the medications. I wish you the best in whatever decision you make.
The meds will be antibiotics that have side effects. At your age, personally I would stick with ACT's (airway clearance techniques) and nebbing saline. If you start having symptoms then you could go for the drugs at that time.
God Bless
Cheryl