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@ginnysc

I was diagnosed with MAC a year ago. Other than shortness of breath I have no symptoms, but 3 CT scans by my pulmonologist have shown the MAC worsening. He's referred me to an ID doctor to start treatment, but I'm uncertain that's the right thing to do. I'm 83, live in a Continuing care community where my husband is in a nursing home and I have much responsibility for his care. I'm not sure what to do. Any thoughts?

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Replies to "I was diagnosed with MAC a year ago. Other than shortness of breath I have no..."

The meds will be antibiotics that have side effects. At your age, personally I would stick with ACT's (airway clearance techniques) and nebbing saline. If you start having symptoms then you could go for the drugs at that time.
God Bless
Cheryl

I am 70 years old and diagnosed with MAC 6 months ago. Started Azithromycin, Ethambutol and Rifampin 4 months ago. I wanted to take the antibiotics and clear out the infection, since I had pneumonia twice. It hasn't been too bad. Diarrhea in the morning, which I take psyllium seed capsules (20 throughout the day.) Please place your own needs and desires front and center during this decision.

I am 77 and was diagnosed with the same 2 years ago. I was put on the big 3 (Azithromycin, Rifampin and Ethambutol). I had the nausea, diahrea and loss of appetite but it didn't last more than a few months. I was lucky I never got fatigue. I was taken off Ethambutol because of eye problems which corrected itself after off the med for 3 months. I was put on Arikacye for 8 months buy taken off because of terrible cough and shortness of breath. They are now trying Nuzyra which I start in 2 days. Everyone is different in reactions to the medications but It is definetly worth going on the medications. I wish you the best in whatever decision you make.