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Small cell carcinoma with no primary

Lung Cancer | Last Active: 1 day ago | Replies (8)

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@colleenyoung Thank you for responding.
Matt’s initial scheduled treatment was carboplatin with etoposide and immunotherapy until the day of treatment, when the oncologist learned there was no primary found. The immunotherapy was removed from the treatment plan. A radiation oncologist was brought in to our long strange trip.
Our plan was four cycles of chemo for three days every three weeks. Radiation five days a week for fifty one days.
The chemo drug the next two sessions was cycplatin which works with the radiation. We were back to carboplatin for fourth chemo session. Our CT is scheduled for May 17th, not April that I said earlier.
Matt has been extremely tired these seven weeks after treatment. The carboplatin has kicked his butt adding nausea to his side effects. Compazine and zofran have become his favorite snacks.
Matt and I are looking forward for some good news. Only positive vibes here!

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Replies to "@Colleenyoung Thank you for responding. Matt’s initial scheduled treatment was carboplatin with etoposide and immunotherapy until..."

Hello, Colleen referenced me above. My husband has Cancer of Unknown Primary (CUP) for SEVEN YEARS!
When he was first diagnosed they gave him a few months but here we are (thankfully)! I hope you and your husband have a similar experience with longevity.
My husband has had both chemo and radiation over the course of these years. He is currently having a flare of his cancer and is doing radiation to the new spot where the cancer has appeared.
His cancer was discovered in his lung and a nearby lymph node. It has spread to his spine and hip and most recently to a soft tissue tumor on his back, which has now spread to the lymph nodes in his right armpit. We tackle each reappearance, primarily with radiation to the new spot(s). It will then disappear for as much as two years and come back. Very odd. They have tested in every way possible but can't determine a type of cancer. He used Keytruda along with his Chemo (very short one week treatment with chemo)....he has other health issues which make Chemo very difficult for him and as you're learning, chemo is a rough sport. He may use Keytruda again at some point. It is the only immunotherapy the testing shows might work and at that.....might not be very successful. I hope this gives you a perspective on another patient battling the very odd CUP diagnosis. Big hugs to you and your husband.