Connect
Discussion
Comment receiving replies
Replies to "I started on it every day for the first 2 or so years. Now I do..."
MAC & Bronchiectasis | Last Active: Apr 8, 2024 | Replies (34)
Comment receiving replies
I started on it every day for the first 2 or so years. Now I do 3 times a week.
I started with the side effects that everyone seems to start with but they eventually subsided. I found doing the treatment before bed and gargling with the warmest water possible afterwards helped with resting vocal chords through the night. I still cough a bit through the treatment but it has its advantages in helping to clear lungs too.
Replies to "I started on it every day for the first 2 or so years. Now I do..."
Connect
Yes, I first nebulize with the 7% saline and then use the Aerobika and postural drainage. The nurse told me that opens and clears everything for the Arikayce to reach the lungs. I do this before bedtime also, and then take my Azithromycin and Ethambutol- all on an empty stomach 3 hours after supper. I then gargle with warm water. The Arikayce always helps to bring up a little more sputum.
I have not had any noticeable issues with my throat, but when I was singing lullabies to myself the other day (new twin granddaughters), the notes came out in all kinds of forms. I am not a singer, but I could always carry a tune. It is as though I have no ability to control the notes! So, apparently, the med plus the saline inflame the vocal cords. There are always subtle effects that we may not be aware of.