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Bronchiectasis - How ya feeling?

MAC & Bronchiectasis | Last Active: Apr 2 10:20am | Replies (11)
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@woot

My pulmonologist, head of bronchiectasis/Mac clinic at UNC wondered if I might have eosinophilic asthma. Tests said no. So she put me on Breo, an inhaled steroid. I had resisted because of Mac years ago, but she says benefits outweigh risks. I’m on day 13 of 30 days. Don’t know if it helps or not because of my good days/bad days.

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Replies to "My pulmonologist, head of bronchiectasis/Mac clinic at UNC wondered if I might have eosinophilic asthma. Tests..."
Sue, Volunteer Mentor | @sueinmn | Apr 2 9:07am

I use Symbicort, a combi of steroid and long-acting beta-agonist - it has been working for me for almost 2 years, and so far no infections🤞 My asthma is much better controlled, and it has helped my shortness of breath by reducing airway inflammation. The Breo (powder version) just caused me to choke.
Sue

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barbfit | @barbfit | Apr 2 10:20am

I also go to UNC! I have dr. Patel. He is always very empathetic and honest with me. A comment he made once is any pulmonologist that claims they know a lot about bronchiectasis doesn’t know a lot about bronchiectasis. There’s just not enough research to answer many questions, but that’s what we are trying to find out. In absense of infection, self care is the best treatment: Airway clearance, exercise (as much as possible) and sleep.

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