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Mycobacterium heraklionense, has any one heard of it

MAC & Bronchiectasis | Last Active: Apr 5 9:56pm | Replies (7)
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@sueinmn

@wesbig Every day is something new here! Like you I went diving to learn about this mycobacteria, only to learn it was first isolated about a dozen years ago. Best I could find was the genomic classification here:
https://bacdive.dsmz.de/strain/24235

Nothing about infectious capacity in humans. So a few questions for you...
Did they tet more than one sputum sample? Were any other strains isolated in the specimens? Do you have symptoms - cough, fatigue, weight loss, nodules or cavities evident on a CT scan?
If the answers to all these questions is no, I personally would be looking for someone who specializes in treating MAC, quite possibly Mayo, National Jewish Health or University of Texas, Tyler to name a few.
I see you have been a member for a few years, have you been treated for MAC before?
Sue

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Replies to "@wesbig Every day is something new here! Like you I went diving to learn about this..."
Wesbig | @wesbig | Apr 2 3:14pm

Thanks for your reply. My pulmonologist did 3 sputum cultures. I am losing weight I don’t caught much unless I use the nebulizer. Hat a CT scan, no pitting or nodules.
Steve

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