Connect
← Return to Estrogen Level Change
Discussion
Comment receiving replies
The Onctotype test was done with tissue from the surgery. They said 2 weeks for results. Mine took 4 because it came back so high, they sent it to a different lab to see if it came back the same and it did. I’m in NY, I’m honestly thinking of going to Sloan Kettering or Roswell Park for a 2nd opinion. I asked for a PET scan and the Oncologist asked why. I said because I want one. I told her I’m like a Judge, I need to see the evidence, not just someone tells me I’m good.
Replies to "The Onctotype test was done with tissue from the surgery. They said 2 weeks for results...."
I am agreeing with @colely I would ask for another opinion at Sloan Kettering. They are a large cancer and can give you more information.
Indeed if you are triple negative, it could or should change the monitoring protocol moving forward. Also if that is true, you should know that, not be guessing.
Definitely a heterogenous cancer is more difficult to understand, but your cancer professionals should be making sure you understand.
I am glad you found connect, have you visited some of the other pages yet?
Connect
Well if you are indeed triple negative, the Oncotype should not have even been done and yeah, it would come back high. How long ago was that? You have already done the chemo and radiation, so you are done with treatment, is that right? The only issue is if there is any estrogen positive cancer to treat with an anti-estrogen med like Tamoxifen or an aromatase inhibitor and it sounds like the Oncotype did not recommend that or your doctors. What was your estrogen score on the Oncotype?
I am glad you are done with chemo and radiation. Keep us posted!