1. < Prostate Cancer

Hot Flashes and Symptoms

Posted by miked77 @miked77, Mar 29 4:28pm

This question is just because of my curiosity. I have been on Testosterone blockers (Orgovyx) for 17 months and I get hot flashes somewhat frequently. During the day, there is no warning--I just start getting hot for a couple minutes. During the night when sleeping, it is different. My legs and feet start hurting which wakes me up. Then, a minute or two later, I get the hot flash.
So, I am asking if anyone else has similar symptoms? During the day, it is no big deal. At night, it wakes me up and takes me awhile to get back to sleep.
Just Curious.
Mike D

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ecurb | @ecurb | Apr 1 3:38pm
In reply to @wooldridgec "Yes. I wake up to terrible hot flashes. I had a couple last night. For me,..." + (show)
@wooldridgec

Yes. I wake up to terrible hot flashes. I had a couple last night. For me, I feel like I lose my breath a little and then I just feel something in my gut and it starts moving up my body tp my head. By the time it gets to my head, my face is red, I feel burning tingles and I am sweating terribly. It then triggers my body to need to pee immediately. At night, I wake up to a pool of sweat and I throw off the covers, go to the bathroom, drink water, go back to bed. Some hot flashes are worse than others too. Some make me feel very weak and I have to lay down. Other just happen and I keep moving on. I just keep calm and carry on.

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I d say you need to change your ADT medication as theirs lots of them out there to choose from. Arbiterone leaves me with tiny hot flashes...not what your experiencing.

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stevecando54 | @stevecando54 | Apr 3 3:42pm

I get hot flashes but not too bad, most times it makes me laugh. Never had them during the night though and no leg restlessness. they use to creep up to my forehead but lately stay around my neck. Crazy how many side effects we get from the meds. Best to all.

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tehill | @tehill | Jun 12 11:11am

I'm 75 and have been on Orgovyx for 6 months. The plan is to give me a holiday at the end of the year. PSA is undetectable and T is below 7. The side effects are weight gain and hot flashes. I've gained about 15 pounds and the hot flashes are no fun. They are tolerable during the day but at night; they disrupt my sleep. I've tried 300mg of gabapentin but it doesn't seem to do anything for me.

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1 reply
mike72 | @mike72 | Jun 13 5:30am
In reply to @tehill "I'm 75 and have been on Orgovyx for 6 months. The plan is to give me..." + (show)
@tehill

I'm 75 and have been on Orgovyx for 6 months. The plan is to give me a holiday at the end of the year. PSA is undetectable and T is below 7. The side effects are weight gain and hot flashes. I've gained about 15 pounds and the hot flashes are no fun. They are tolerable during the day but at night; they disrupt my sleep. I've tried 300mg of gabapentin but it doesn't seem to do anything for me.

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Welcome to the club.. after 2 years of ADT and a holiday of 8 months I still experience hot flashes and sweats during the night.
I have learned to adapt and get back to sleep.. it is the price we pay for extending our lives with PC….

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1 reply
seasuite | @seasuite | Jun 13 9:02am

I had only 4 months of ADT/Orgovyx that completed 23rd January, yet, I'm still flashing like a paparazzi camera and producing nowhere near to what I'd call a full erection. I tried taking 10 mg. Cialis generic, Tadalifil, however, that had no significant effect and produced undesirable side effects. I now take 5 mg., every two to three days, just in case it might help my symptoms (I write See Alice5 on my calendar:-). So why do I need my T back? As Shakespeare wrote, 'let me count the ways'...I've gained weight; lost strength; low libido; deplorable erections and, yeah, the flash thing.

My main RO said, regarding T supplements, 'let's see how this goes'. The secondary RO, so far, commented about undoing the treatments I've completed. So, while I'm conscious that this is whining compared to brothers, herein, with more serious conditions, I still want to do the best I can. Blessings to all!

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1 reply
tehill | @tehill | Jun 13 11:46am
In reply to @mike72 "Welcome to the club.. after 2 years of ADT and a holiday of 8 months I..." + (show)
@mike72

Welcome to the club.. after 2 years of ADT and a holiday of 8 months I still experience hot flashes and sweats during the night.
I have learned to adapt and get back to sleep.. it is the price we pay for extending our lives with PC….

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You bet. I was diagnosed in 2015. No symptoms but a PSA of 16. Had surgery at Mayo and 37 rounds of radiation treatments. I was good until 2021 when the PSA became detectable and began to rise. In December of 2023, the PSA hit 2.9 and I decided I had to take this seriously. So, started Orgovyx in January 2024. PSMA PET scan in January was negative. But yes, the side effects are annoying, however, the alternative is worse.

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grandpun | @grandpun | Jun 14 8:51am
In reply to @seasuite "I had only 4 months of ADT/Orgovyx that completed 23rd January, yet, I'm still flashing like..." + (show)
@seasuite

I had only 4 months of ADT/Orgovyx that completed 23rd January, yet, I'm still flashing like a paparazzi camera and producing nowhere near to what I'd call a full erection. I tried taking 10 mg. Cialis generic, Tadalifil, however, that had no significant effect and produced undesirable side effects. I now take 5 mg., every two to three days, just in case it might help my symptoms (I write See Alice5 on my calendar:-). So why do I need my T back? As Shakespeare wrote, 'let me count the ways'...I've gained weight; lost strength; low libido; deplorable erections and, yeah, the flash thing.

My main RO said, regarding T supplements, 'let's see how this goes'. The secondary RO, so far, commented about undoing the treatments I've completed. So, while I'm conscious that this is whining compared to brothers, herein, with more serious conditions, I still want to do the best I can. Blessings to all!

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"seaside", no matter the grade/score/level, PC is a big deal. And living to our utmost is the biggest deal by far.
Keep up the good work and don't minimize its importance nor your importance.
God Speed.

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maxvt | @maxvt | Jun 14 8:54am

I too had hot flashes after a Lupron injection.

Venlafaxine, 37.5 mg, twice daily was a life-changer.

My Urologist advised this and my PCP wrote the script when I showed him my research showing its positive effects on a man my age.

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1 reply
budisnothome | @budisnothome | Jun 14 9:28am
In reply to @maxvt "I too had hot flashes after a Lupron injection. Venlafaxine, 37.5 mg, twice daily was a..." + (show)
@maxvt

I too had hot flashes after a Lupron injection.

Venlafaxine, 37.5 mg, twice daily was a life-changer.

My Urologist advised this and my PCP wrote the script when I showed him my research showing its positive effects on a man my age.

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Maxvt. Do you have any side effects with the meds? It did not work well for me. How long did it take for you to notice a difference?

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maxvt | @maxvt | Jun 14 12:20pm

It began working within a few days. As I was already on AD meds, I just switched to Venlafaxine; I’ve been on it for a bit over two years.

I’m still having less intense heat flashes. My doctor says I need to exercise more. I am now increasing my workouts in hopes of eliminating these.

I never noticed any adverse side effects.

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