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Breast Cancer | Last Active: Apr 2 10:34am | Replies (6)
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A little different but I went from HER2+ before surgery to HER2- after surgery. Sometimes tumors are "heterogeneous." Or the DCIS involved has different characteristics than the IDC. Did you have an Oncotype done before surgery (Now with ER- they won't do one....)
You can get a second opinion, have your specimens sent to the second opinion, and even ask for a request. I got 4 opinions. The last one retested and I finally felt more certainty. I got to know all the different blocks of specimens from my surgery and which ones were best to test!!!
These differences in tests are hard because they affect treatment choices.
Replies to "A little different but I went from HER2+ before surgery to HER2- after surgery. Sometimes tumors..."
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The Onctotype test was done with tissue from the surgery. They said 2 weeks for results. Mine took 4 because it came back so high, they sent it to a different lab to see if it came back the same and it did. I’m in NY, I’m honestly thinking of going to Sloan Kettering or Roswell Park for a 2nd opinion. I asked for a PET scan and the Oncologist asked why. I said because I want one. I told her I’m like a Judge, I need to see the evidence, not just someone tells me I’m good.