@windyshores
Windy I am so sorry too hear about the problems you face as well as your daughter. The intuition that people have with chronic health problems have and the bond between a parent and child are things science has yet to quantify.
That's a hard position to be in, making serious calls based on those things when the professionals either don't know or worse yet oppose it. I'm really glad she pulled out of that.

I think I have brain inflammation three ways. From tbi from autoimmune and from autism. I have been been asking my neurologist to look into this for three years. I have had to manage this stuff on my own for a long time. Its hard to believe that brain inflammation can cause such terrible problems. I've been having nerve pain for years, insomnia, brain fog, burning sensation in my head, seizures, twitches, "light" hallucinations like hearing or smelling things, just to name a few symptoms. I'm sure you know the deal. I wouldn't wish this on anyone. I hate that anyone including your daughter would ever experience this.