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Cerebral Brain Atrophy: Anyone else out there?
Stroke & Cerebrovascular Diseases | Last Active: Oct 1, 2023 | Replies (268)Comment receiving replies
@howardjames I have been diagnosed with Multiple System Atrophy which is a degenerative fatal disease with a prognosis of 5 - 9 years. It involves cerebral atrophy. which in turn is due to a protein alpha-syn which has altered its normal state and now formed deposits of non-soluble aggregates which destroy the neurons.Sounds similar to your diagnosis. No cure as yet. Very difficult to come to terms with.
pec2884
Replies to "@howardjames I have been diagnosed with Multiple System Atrophy which is a degenerative fatal disease with..."
I am so sorry to hear of your rare diagnosis. Which I could give you a hug.
Thank you so very much for your empathy!!!
So sorry about your diagnosis. Wondering if you were diagnosed at Mayo Clinic. Also is the cerebral atrophy affecting your balance? Howard is losing his balance and is walking with a cane. Sometimes has to use the walker (especially in evening). He will eventually be in a wheelchair and Mayo doctor says he will begin to have trouble swallowing and could aspirate into a lung. Just wondering if you are younger than he. He is 77 and is grateful this did not occur when he was younger and holding a job. Please keep us posted. This is a wonderful site!
@howardjames. No I live in South Africa and would love contact with fellow MSA suffers. Yes my balance is affected by the Cerebral Atrophy. I am still in the early stages and only walk with a stick when taking the dogs for a walk. I was diagnosed in March this year with symptoms appearing in 2013. I am 73 yrs old and still athletic, I have been warned about trouble with swallowing, speech and loss of involuntary muscle control. I am due for another visit to my neurologist tomorrow and have many questions for him.
Thank you for your reply. Will keep in touch
pec2884
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This is the first reply to my post. When my husband was seen at Mayo Clinic in Jan.of 2015 they gave him 3 to 4 years to live. They did not say what the cause was. He is now walking with a cane and in the evening with a walker if he is tired. He is progressing. He saw a movement specialist at Mayo Clinic. He said they were doing stem cell research. We will contact him in Aug. to see if there is anything different going on. I'm so sorry for you. My husband is 77 and at least has had a full life. It is hard on him as he was very active. We don't know whether to go back to Mayo Clinic or not. We will let our local doctor contact them.<br> God's blessings on you.<br>