Connect
← Return to Want to hear from others who have Stage 4 Chronic Kidney Disease (CKD)
Discussion
Want to hear from others who have Stage 4 Chronic Kidney Disease (CKD)
Kidney & Bladder | Last Active: Jun 1 4:57am | Replies (216)Comment receiving replies
@marye2 There is a community program in the LA area called Circle of CORE (UCLA) that is an advocacy group that makes sure kidney patients receive the best care possible. In any event, as long as your team of medical personnel include at least a nephrologist, a dietitian and a PCP, you should be in good hands.The most important factors are to learn as much about this disease and to follow up on your labwork regularly. We all have to watch the potatoes and tomatoes, but it sounds like you have a good start.
Replies to "@marye2 There is a community program in the LA area called Circle of CORE (UCLA) that..."
Connect
Wow! Thank you for this information!!!!! Yes, I'm back to school full-time. I'm absorbing so much and want to learn as much as I can. And that is the Point: As you said, one's team is of primary importance. Unfortunately, my brother did not team up until I had to stir up some complaints in a polite, assertive way. It's so important, especially in the web of tangled medicine we currently Have. I am going to check CORE out now. And still searching for a better nephrologist.
Thank you, Marye 2. I hope your husband is doing better as well!