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Want to hear from others who have Stage 4 Chronic Kidney Disease (CKD)
Kidney & Bladder | Last Active: Apr 18 5:25pm | Replies (212)Comment receiving replies
My husband is at stage 4, with high potassium and phosphate levels. We finally found a powder that he can make into a drink to manage the potassium. Lokelma gave him side effects due to heart meds. Our kidney dr referred us to Circle of Care (paid by Medicare) and so far, the services have been outstanding. We are using an online app to manage the renal diet, particularly potassium. He is missing potatoes and tomatoes, but generally not too many other changes needed.
Replies to "My husband is at stage 4, with high potassium and phosphate levels. We finally found a..."
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@marye2 There is a community program in the LA area called Circle of CORE (UCLA) that is an advocacy group that makes sure kidney patients receive the best care possible. In any event, as long as your team of medical personnel include at least a nephrologist, a dietitian and a PCP, you should be in good hands.The most important factors are to learn as much about this disease and to follow up on your labwork regularly. We all have to watch the potatoes and tomatoes, but it sounds like you have a good start.