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@daniellecrpssucks

Hello, my name is Danielle & I've had CRPS in my right foot & leg from an injury since 2007. It stayed contained, and while very painful at times, was manageable. About 18 months ago I started having odd symptoms & pains & it spread up my right side, into my shoulder, my upper right back & now across to my left shoulder. My lungs are also effected & I believe other things but the Dr's. don't know anything about it so I don't really have any answers. There are days touching my 9yr old are almost impossible. I can't lay or sit. It's actually less painful to be up & moving which is mentally taxing because there is no break, no getting away from, no relaxing. It's been incredibly hard but I'm learning I have to be my own advocate & fight for answers & help. Finding support in people who understand has been helpful. Thank you for listening🧡

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Replies to "Hello, my name is Danielle & I've had CRPS in my right foot & leg from..."

Sorry to hear that.
Hopefully you’ll find someone who can help you manage this and give you relief.