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Hypogammaglobulinemia

Autoimmune Diseases | Last Active: Apr 2 2:16pm | Replies (77)
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@healthplease

Hi all,

My name is Andrew. I’m two years into getting hypogammaglobulinemia and boy is it a struggle. Tough to find joy sometimes. I’m 36 with a little boy and another on the way. I currently have a fever and will get antibiotics tomorrow from my infectious disease doctor. What are some best practices around managing this?

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Replies to "Hi all, My name is Andrew. I’m two years into getting hypogammaglobulinemia and boy is it..."
Becky, Volunteer Mentor | @becsbuddy | Mar 31 10:08pm

@healthplease Hi, Andrew, I’m really sorry to hear that you have this especially with young children in the house. I included an article by the Nat’l Institutes of Health explaining all about hypogammaglobulinemia. If you scroll down the page, you will come to a section on treatment and management. You might also make a list of questions for the infectious disease doctor. Questions like ‘how to avoid infections with young children in the home’ and ‘is mask wearing important’ and what vaccines are safe and important to get.’
https://www.ncbi.nlm.nih.gov/books/NBK563134/#article-76218.s8
Is your wife supportive of your illness? She will need to be very involved in helping you avoid infections.
If you think back, was anyone else in your family having a similar problem? Who?

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