← Return to Low Risk IDC w/ Baseline Multiple Painful Conditions

Discussion

Low Risk IDC w/ Baseline Multiple Painful Conditions

Breast Cancer | Last Active: Apr 14 4:04pm | Replies (22)

Comment receiving replies
@1ek

I agree with @triciaot, @windyshores and @mir123 - continue what you’re doing, talk to your doctors and advocate for yourself.

I would add that the radiation treatment that is offered is typically based on what that specific location/cancer center has the equipment and expertise to provide.
The first location I went to only offered 15 radiation treatments, 5 days a week for 3 weeks, and they did not have the equipment to do prone position (laying on your stomach, which can reduce the amount of radiation to surrounding tissues). I went to a dedicated cancer center and received 5 treatments in the prone position over a 2 week period (mine was stage 1a, not sure if 1c would change the radiation plan). The radiologist said that some centers give the treatments on 5 consecutive days, but they found that going to every other day often reduces the side effects. I don’t have EDS, but due to an allergic reaction to an antibiotic that caused my skin to blister & peel, my skin is very sensitive. About 3 days after my last treatment I had some redness/rash/itching/peeling that lasted 10 days.

It sounds like you have a good grasp on your conditions, so I will just say, keep asking questions of your care team so you can make informed choices.

Jump to this post


Replies to "I agree with @triciaot, @windyshores and @mir123 - continue what you’re doing, talk to your doctors..."

Thank you @1ek. Really appreciate that you worked to find the best facility and treatment plan! I will be asking my Rad Onc about this on the 11th when I see him for the first time. If we don't ask, we'll never give them the opportunity to assure that we are treated with the best possible outcomes. May I ask, was this in a large city? Thank you again.