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Recurrence….any advice

Gynecologic Cancers | Last Active: Apr 1 9:42am | Replies (10)

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@gynosaur42

Just wanting to wish you the very best, @ljwallac79. When I look for more information about sex cord stromal oc, I see that it is a rare (< 5%) form of ovarian cancers, and that there are still several subtypes within that category. I wonder if you have further detail about the particular subtype and whether there are any Gyn-Onc specialists or centers that see this most often, so would have experience and wisdom for guiding you and whichever team you work with going forward. That may be Mayo, or they may also bring in expertise from elsewhere, if needed.

I can only begin to imagine how challenging it is, both practically, and on an emotional level, to take in how little may be known and how, within that, there can be such divergent approaches.

I, too, am so very glad to know that you are turning toward greater resources and expertise. I have felt so surrounded with both kindness and expertise while at Mayo. The first surgeon I met with after my comparatively common and simple diagnosis told me, when I later told her that I was choosing to go to Mayo for my surgery, that there was no way they could have put together the kind of team and could have offered the specificity of treatment at my regional medical/cancer center. Her reassurance was borne out in my experience at Mayo in 2-23.

I am sending my very best wishes for you to receive the level of care and the clarity of explanations for all your good questions that you need and deserve right now. I hope to hear how that goes for you.

And, there are many resources for helping you find places to stay, etc, that will meet your particular needs, so feel free to ask any of those kinds of questions, as well.

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Replies to "Just wanting to wish you the very best, @ljwallac79. When I look for more information about..."

Unfortunately my diagnosis was sex cord stromal, not otherwise specified....I guess they couldn't figure out which type it was. of course my luck would be that not only do I get cancer but I get a rare type. Trying to remain optimistic as I have 4 children, 1 in college and the other 3 still at home that are going to need me around for many years to come.