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@lathomasmd

I’m 63 and I’m interested, especially in meeting others going through recurrence. I’m in a group that meets monthly in person, but everyone else is in remission. When we meet, each one tells how long they’ve been cancer-free, and everyone claps and cheers. When it’s my turn, I describe my situation and just bum everyone out. Then the next lady talks about being in remission for five years and everyone cheers. I feel very alone in that group.

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Replies to "I’m 63 and I’m interested, especially in meeting others going through recurrence. I’m in a group..."

I’m 5 months out from frontline 3b,living in the nw. Tried lynparza for 3 weeks 150 mgs, and I couldn’t tolerate the headaches, stinky and unhealthy poops, neuropathy, brain fog, blurry eyes, bone pain….
There’s more, but you get it.
Asked my doctor to do a signatera test, feeling like it’s back. She asked me what would I do if It did show a return? Basically would i do a treatment, she also suggested doxil w avastin,… pretty sure doxil has low success. So more debilitating side effects for maybe a year. Tough choices.
So, open to feedback and suggestions. Trying to keep a positive attitude and live the best life for today.
I feel for you, it sounds great to meet up in person, however another group might be better. Or I’d share how you feel. I have felt there are some groups that shun from sharing anything but positive. Like your story isn’t welcome, i get that they’re wanting to show a face of success.
Take care of you, if you’re not getting what you want there…..