He’s been told that he doesn’t have celiac disease:/ and really it’s basically any food. We’ve tried to eliminate stuff but the gi doctor told him it’s not lactose for sure. I’m gluten free myself and I might get arthritic but this is way worse. Today I got him out biking to have fun and he was afraid to eat breakfast but we did a smoothie at the park and he was dying by the time we got home. A friend of his came over and we realized he missed a call from the neurologist. One major other component is that he had a arachnoid cyst on his brain and he’s had several migraine and nerve type issues there but they have told him 4 different times that they wouldn’t drain it. The missed callers said they had some report saying he had extra cranial pressure and some other stuff they want to address and do some sort of procedure. I feel like this was a hopeful call and he’s calling Monday to hopefully get scheduled. I went with him to a neurosurgeon in Nov to talk about the obvious symptoms he’s having and there’s actually so many articles of ppl with this specific cyst to have mania. Paranoid psychosis. I shared with them and still they have made us go in circles ( this was an out of the Va neuro) but the Va has circled back this time. This is seriously ridiculously way too hard and it’s so unfair to our veterans. I thought before that maybe the cyst was it all, and I’m really hoping it’s the answer after all. His friend is in medical insurance for veterans so he’s going to start going with his to doctors appointments to hopefully get shit done😢
Thank you for your support. How amazing would it be if eliminating the cyst it would go away. The doctors can’t find anything in his gi system so it does seem logical!!