← Return to Chronic Pain members - Welcome, please introduce yourself

Discussion

Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 5 hours ago | Replies (7052)

Comment receiving replies
@nicolemramirez

He’s been told that he doesn’t have celiac disease:/ and really it’s basically any food. We’ve tried to eliminate stuff but the gi doctor told him it’s not lactose for sure. I’m gluten free myself and I might get arthritic but this is way worse. Today I got him out biking to have fun and he was afraid to eat breakfast but we did a smoothie at the park and he was dying by the time we got home. A friend of his came over and we realized he missed a call from the neurologist. One major other component is that he had a arachnoid cyst on his brain and he’s had several migraine and nerve type issues there but they have told him 4 different times that they wouldn’t drain it. The missed callers said they had some report saying he had extra cranial pressure and some other stuff they want to address and do some sort of procedure. I feel like this was a hopeful call and he’s calling Monday to hopefully get scheduled. I went with him to a neurosurgeon in Nov to talk about the obvious symptoms he’s having and there’s actually so many articles of ppl with this specific cyst to have mania. Paranoid psychosis. I shared with them and still they have made us go in circles ( this was an out of the Va neuro) but the Va has circled back this time. This is seriously ridiculously way too hard and it’s so unfair to our veterans. I thought before that maybe the cyst was it all, and I’m really hoping it’s the answer after all. His friend is in medical insurance for veterans so he’s going to start going with his to doctors appointments to hopefully get shit done😢
Thank you for your support. How amazing would it be if eliminating the cyst it would go away. The doctors can’t find anything in his gi system so it does seem logical!!

Jump to this post


Replies to "He’s been told that he doesn’t have celiac disease:/ and really it’s basically any food. We’ve..."

@nicolemramirez
It is good that you are getting help with the arachnoid cyst. That may be the source of the nausea and vomiting. The HIDA scan may not be helpful if your boyfriend already had his gallbladder removed and has the brain cyst causing symptoms.

Read the following about heating pad type burns. It can increase risk for certain skin cancers and would be good to stop using since the cause is neurological and not necessarily caused by something wrong in his GI system. He may want to try burn creams, Salonpas Lidocaine pain patches or capsaicin creams if he has any nerve pain on his skin.
https://www.medconsumers.com/how-to-get-rid-of-heating-pad-burns/
Praying for answers and treatment for his cyst. That seems the most urgent issue to address to prevent further damage to his brain/body.