Sorry to hear about your ongoing pain issues. I can certainly relate. Almost 2 years ago I had a Laminectomy and Spinal Fusion from T-10 to S-1. Was brutal. I had hoped that my surgery would help both my mobility and my pain. It did not. I have seen probably 6 or 7 neurologists, neurosurgeons, orthopedics back and spine specialists, pain management professionals and have done extensive physical therapy, laser treatment, seen a spine specialist who does surgical lead implants in your spine to relieve pain, had gait studies, seen a rheumatologist and has multiple CT scans and MRI and nerve conduction studies, the layer of which has shown that I have severe peripheral neuropathy. The neurosurgeon who performed the Laminectomy and Spinal Fusion originally told me that nerves take time to regenerate. I still do not have feeling in my lower back
My last appointment with a neurologist two weeks ago had me do additional blood work and get B-1 transfusion because my thiamine levels were very low and they thought ai might have dry Beri Beri.
I have come to the point that all the physicians / doctors and specialists have been unable to give me any explanation as to why I have progressed to where I am. One of the peripheral neuropathy specialists who is affiliated with Vanderbilt University Hospital and who is one of only three individual doctors who are on the list of the National Peripheral Neuropathy Foundation told me “enjoy where you are. Don’t fall. You will be in an electronic wheel chair”.
So acceptance with the hope of Divine Intervention is where I am. I know that GOD will use my suffering and situation to bring Glory and Honor to His name if I let Him. Just have to trust Him.
Hope your situation improves …….
Onward and upward,
Don
Hi Don,
It is just over a year since I had my surgery. I am having increments of improvement. Walking and an ice pack on my back seems to do wonders. I've started taking a shower has hot as I can stand then slowly the hot water until I can't stand the cold water anymore.
I've discovered that you have to listen to your body and stop doing what it is when the pain starts sneaking up on you.
Best of luck!