← Return to Struggling with Tymlos medicine

Discussion

Struggling with Tymlos medicine

Osteoporosis & Bone Health | Last Active: Feb 9 1:02pm | Replies (95)

Comment receiving replies
@artscaping

Good evening @darla1. I am so sorry to hear about your body's uncomfortable response to Tymlos. Yes, I handled Tymlos injections for two years, and my bone density increased. My experience was just before the clicks were optional, so I started at the top of the climb. Before Tymlos, I was prescribed Boniva, which was just not working for me, complete with pain and discomfort after every dosage. Both my endocrinologist and PCP at the time encouraged me to try Tymlos or Forteo. I actually chose Tymlos because it was less expensive than Forteo. That was four years ago and now I am taking weekly capsules of alendronate, which was recommended by my Mayo Clinic endocrinologist.

I sure wish it was possible to take a class or workshop about our options. I knew absolutely nothing about osteoporosis. I don't think my mother ever took any medications, and I did not have any other friends or colleagues to lend me a hand. At least now we have resources and supportive folks to help us.

May you have happiness and the causes of happiness.
Chris

Jump to this post


Replies to "Good evening @darla1. I am so sorry to hear about your body's uncomfortable response to Tymlos...."

Considering the potential quality of life altering effects of these drugs it appears there is no/little consideration of the impact on the people captive to the current osteoporosis treatment standard of care. With the state of our healthcare system and the power of drug companies, I feel so vulnerable, especially after reading much of what is presented on this site. Looks like most people are more or less on their own, making their own adjustments to treatment and relegated to long waits to see their practitioners when problems arise. All seems so scary to me.