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Head pressure is ruining my life

Brain & Nervous System | Last Active: Apr 2 2:20am | Replies (28)

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@lkoch

I started with pressure in back sides of my head, numbness across forehead and down left side of face, excessive brain fog, loss of appetite and weight loss, anxiety and depression in Nov 2023. No headaches. Went to all my doctors. Had MRI, MRA, EEG bloodwork including Lyme and Lupus. Everything came back fine. Neurologist diagnosed silent migraines and put me on Depakote ER. I don’t present with silent migraines and a few of my other doctors are skeptical. Some symptoms have become less, but over all I still feel very unwell. I don’t like being on Depakote. I think it gives me side effects. Other people have told me it sounds like long Covid. I have become depressed and spend a lot of my time indoors. Does this sound like something others have experienced?

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Replies to "I started with pressure in back sides of my head, numbness across forehead and down left..."

Yes, your description - minus Depakote and substituting weight gain for weight loss -aligns with my long history of what was eventually diagnosed as Idiopathic Intercranial Hypertension. IIH led to a cerebrospinal fluid leak and surgical implantation of a ventriculoperitoneal shunt. IIH has become better known because of its association with the Mirena IUD (I do/did not have one) and the lawsuit against Bayer Corp. - and that raises the question for many women as to whether hormone therapy may be contributing to IIH and related symptoms. Another aspect to investigate might be mast cell activation and dysautonomia.