Sure, in 2008 I was officially Stage IVB T2N3M0 on left tonsil caused by HPV and one of my lymph nodes was over 7cm and that is not a typo. I had no surgery whatsoever as I got a second opinion from Froedtert & Medical College of Wisconsin Cancer Center who said I wouldn't need it and were extremely confident I wouldn't need a feeding tube either and they were correct. In addition, cancer free in March of 2009.

Unfortunately, just diagnosed with Tongue cancer on my left side of my mouth on March 1, 2024, and am finishing my research and second opinions. I have left partial glossectomy with a radical forearm free flap surgery scheduled for April 3. Also, includes a modified radical neck dissection. This one was not caused by HPV and was most likely from too much radiation from the first cancer as it is literally adjacent to my left tonsil.

One thing I am finding out is this big de-escalation cancer treatments coming about especially for people who got it as a result of HPV. I just talked to my oncologist a few days ago and he said I would have four different options if I had tonsil cancer today.

Once I have more time as I have a big decision coming up in a few days, I will definitely try to help where needed. I can tell them what to expect over the years and when as there were plenty of side effects from the 70Gy of radiation I had.