← Return to Loss of BMD in hips after taking Forteo or teriparatide?

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@awfultruth

@lynn59 Deciding what to do after seeing bone loss in a DXA report is sure complicated. One suggestion I have is that you don't have to do anything immediately. Doctors may sometimes make it seem that way but you can certainly take some time to research, think about and get comfortable with whatever action you choose to take. A month or two or three to carefully consider your choice is not going to cost you much bone and it may be well worth it in your long term success.

Your effort to figure out why you are now losing bone and you were not before is definitely something to put effort into. If you are into weight training I strongly suggest looking into Belinda Beck and the studies she's done which had success in improving bone density and hip strength.
On another point, you seemed to have looked at osteoporosis meds and come away with the idea that anabolics are risky and anti-resorptives are not. I don't see it as that simple. For myself I try to balance out what the trials and studies showed as side effects and what people on forums are reporting. All the meds have serious problems you just have to sort out the possible benefits and possible negative consequences as best you can. For myself in my situation with bone loss that I could not stop with natural means, I choose Evenity as the first
med. It is newer and that is a negative but the positives seemed to outweigh the negatives and give it the highest score in my mind.

OTH, Forteo has been in use for many many years and has a pretty good track record. I don't see it as being more dangerous than anti-resorptives at all.

Also DXA s being inaccurate is a loose and almost useless way of looking at things. If people have a worrisome DXA score they sometimes talk about DXAs being inaccurate as a way of reducing their anxiety. Yes there are accuracy issues but DXAs are the best tool/device we have commonly available at present to determine our likelihood to fracture. Some other devices have much higher radiation exposure. DXAs are very low radiation. REMS/Echolight may turn out to be great but it is not yet well proven enough in my opinion. So is it possible your latest DXA is inaccurate, yes. You can get another one done or you can pay someone like Lani Simpson to review your DXA scans to confirm their accuracy. I did that. Unfortunately she said the bone loss my DXA's showed was accurate. At least I knew rapid bone loss was indeed happening and could make decisions based on that.

My suggestion is to do what you are doing which is learning about bone loss and evaluating the possible courses of action and don't let the world pressure you into quick decisions.

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Replies to "@lynn59 Deciding what to do after seeing bone loss in a DXA report is sure complicated...."

I’ve already done 8 months of research and was comfortable with my decision to start a teriparatide on April 11th, until I read about potential hip loss on a post yesterday. My endocrinologist only mentioned a potential loss in the forearm.

It was my endocrinologist (who helped write the Canadian Osteoporosis guidelines) that just recently commented that they are finding DEXAs aren’t as accurate and they will be recommending less of them? Unfortunately I didn’t think fast enough to ask why I’m basing drug therapy on my DEXA scans then, as I was shocked that she didn’t want a baseline DEXA (since my last one 8 months ago), or any baseline bloodwork, or any monitoring. Just come see in my two years when you finish therapy. This is what caused my anxiety along with the post on someone losing hip density on Tymlos, which is similar.