Thank you! Yes I'm expecting tough sledding with the Folfirinox, just gotta do it!
Answers to your questions:
My Whipple was done openly, not laparoscopically. Surgeon was able to remove 26 lymph nodes, 3 compromised. Immunotherapy infusions were durvalumab and oleclumab. Whipple recovery is going great! I did a lot of walking as soon as I got out of hospital, aiming for 6000+ steps a day. Also I ate tons of protein before going in for surgery, it wasn't easy but very helpful for recovery. I'm able to pretty much eat full meals now. I was fatigued in the morning (after pooping and eating breakfast) but that has pretty much subsided now. Some occasional upset stomach but doesn't last long. I still have a partial collapse of my lower right lung, I should have brought an incentive spirometer home from the hospital with me - just ordered one on Amazon to help me focus on re-expanding that. Just makes it a bit hard to take a very deep breath. But overall I am doing great.
One thing, I had tried to go without the Creon, big mistake, had a lot of diarrhea in the hospital and for 5 days after. Now I take 3 with large meals, 2 with snacks, and all is fine again. Look up the Bristol stool chart, aim for Type 3 or 4 haha!
Best of luck to you!