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Sjogrens, SFN, unbalanced walking, nystagmus
Autoimmune Diseases | Last Active: Jul 7 9:59am | Replies (25)Comment receiving replies
Nurse49, this is for you to explore your memory. One of my neurologist (he's a neoro-muscular expert and has a family member with Sjogren's) has a theory that Sjogren's get started with a toxic reaction to something. Perhaps a medicine that had undesired side effects or some other outside agency. In my case (he reminded me because I had forgotten) it was one of my first glaucoma drugs that didn't agree with me. My legs felt funny from them on. That was 2013. My balance problems and muscle wasting started much later. And I have never had typical neuropathy symptoms which made it impossible to diagnose. It wasn't until a new rheumatologist saw it and diagnosed Sjogren's. So take a trip in the "way back machine" and see if you fit the profile.
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Hello!I just read your post because I am trying to figure out what happened to me and if I have Sjogren's.Do you think it is possible a bad reaction to an iron infusion could Bring it on?I had a one time dose of 1020 mg for heavy periods for years.I had a reaction days later and can barely walk now.I have extremely dry painful eyes with blurry vision and floaters that can't be in the sun.I also have extreme muscle weakness all throughout my body.I have had several positive ANA's,but the Rhuematologists tell me it is not autoimmune.I have had thryoid disease for years and Lupus runs on both sides of my Family.The neurologist I am seeing us very confused because he has not seen anything like it.I know the muscles are definitely involved.I could not swallow or eat at all at the very beginning and my primary thought to give me steroids which gave me the ability to eat again.