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Talked to hepatologist re: abnormal MRCP

Pancreatic Cancer | Last Active: Apr 16 5:54pm | Replies (22)

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@mnewland99

I started out at Hoag Hospital in Newport Beach, CA, but I’m now at UCLA now that I’m at stage 4 pancreatic cancer metastasized to liver with lesion(s). I get my chemo at the Irvine chemo facility, but I also have video calls and my original consultation for stage 4 is with Dr. Zev Wainberg with the pancreatic oncology dept. at UCLA and I find him very knowledgeable.

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Replies to "I started out at Hoag Hospital in Newport Beach, CA, but I’m now at UCLA now..."

First, I am very sorry that you are facing this journey-how brave you must be! And to help others with concerning issues with the pancreas. I suspect we're neighbors! I initially went to a hepatologist at UCLA but transferred care to UCI but that was for my liver and not my pancreas. (I have had abnormal liver enzymes since my GB was taken out years ago with ALP being the most concerning). I am growing increasingly concerned that there is a 4 month wait for the new EUS/ERCP and that no one at UCI is batting for me. You likely know that often you may not see the primary doctor and that routine issues may be addressed by one of the department fellows. At least that is the case for me. They have not requested any new labs or alternative imaging. In the past I have asked for a GI referral at UCI, but there is no advantage than if I called one myself. I am primarily treated through Providence and have a standard GI with them. Ironically, I just looked at the doctors at Hoag this morning, no kidding! Do you have any opinion if it would be an advantage to see someone in their pancreatic program or which doctor you saw? Were you pleased with their initial diagnostics? Know that I am very thankful for your comment and wish you the best success going forward.