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New to Mac

MAC & Bronchiectasis | Last Active: Apr 26 10:26am | Replies (12)

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@katmckay

I am also fairly new to MAC and am taking Azithromycin, Ethambutol, and Rifampin. I take all but the Rifampin with food and still have GI issues. I have diverticulosis and had a significant episode of diverticulitis in 2022. A month after I began the big 3 drugs I experienced another bout of diverticulitis. My ID doc took me off the drugs while I took Augmentin for the diverticulitis but I have to start again. I haven't seen anything linking MAC treatment drugs to diverticulitis but the timing is concerning. I checked with my GI doctor who said I should try Culturelle, although I already take probiotics so that advice is not particularly helpful. I would welcome any suggestions or links to more information about the GI effects of taking MAC drugs. Thanks.

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Replies to "I am also fairly new to MAC and am taking Azithromycin, Ethambutol, and Rifampin. I take..."

Hello, I am in the long process of getting dx for MAC. All symptoms and CAT support MAC dx but no pos sputum as of yet. However, I can give you a suggestion re the Diverticulitis. I suffered for years with it, and each bout led to another round of antibiotics. I was better during antibiotic treatment but then two weeks later the Gastritis returned with a vengeance. After two years of conventional treatment and constant pain I began an alternative treatment of my own out of sheer desperation. I was tired of living on librax, tylenol and ibuprofen. I started to follow the plant paradox food plan by Dr Gundry. it takes out not just food with gluten but also any food with lectins, gluten is only one type of lectin, there are many more. It took about 6 months to get clear relief and a year to be free of pain. however, 3 years down the road, I am free of discomfort and can even have a piece of cake or pizza once in a while and not be in distress. Good luck on your journey.