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Low Risk IDC w/ Baseline Multiple Painful Conditions

Breast Cancer | Last Active: Apr 14 4:04pm | Replies (22)

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@triciaot

@krisrwalters I thought I read that with Ehlers Danlos that skin does not heal well after surgery. That it can lead to sutured areas that don’t mend quickly leaving them open to infection- which would then cause damage to the fragile skin and more problems. I believe it is because connective tissue is altered in Ehlers Danlos.
It could be the surgeon was trying to limit the size of the open wound on your chest?
Going forward, I’d suggest discussing the Ehlers Danlos with the radiologist. Lower doses of radiation might help limit skin damage? Maybe even ask if it’s possible to do half the radiation sessions and take a break to see how it’s affecting your skin before continuing with the rest. I realize their protocol is to give radiation doses in consecutive weeks, but maybe it could be adjusted for you. I don’t know if/how it would affect the effectiveness of the radiation.

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Replies to "@krisrwalters I thought I read that with Ehlers Danlos that skin does not heal well after..."

Yes, poor skin healing is part of the equation and she may very well have been thinking of that. Seems rad tx would be more concerning in terms of skin healing in the big picture but her perspective would be primarily surgical I suppose. I'll have to remember that it may be only me that's keeping the big picture in mind going forward. I really like your ideas to negotiate on the radiation and will definately discuss with the rad oncologist. Thank you for caring enough to understand my situation and respond. Means a lot to me. Big hugs!!