@krisrwalters is the oncology surgeon refusing to do a mastectomy? My docs were concerned about my ability to handle that surgery so they did one at a time. I did fine. They were more concerned about radiation for me given my lupus diagnosis, not sure why.

What happens if you tell your current doctor that mastectomy is what you want? You do have a right to that choice, I would think.

I hope day 4 without hormones goes okay!

@krisrwalters I thought I read that with Ehlers Danlos that skin does not heal well after surgery. That it can lead to sutured areas that don’t mend quickly leaving them open to infection- which would then cause damage to the fragile skin and more problems. I believe it is because connective tissue is altered in Ehlers Danlos.
It could be the surgeon was trying to limit the size of the open wound on your chest?
Going forward, I’d suggest discussing the Ehlers Danlos with the radiologist. Lower doses of radiation might help limit skin damage? Maybe even ask if it’s possible to do half the radiation sessions and take a break to see how it’s affecting your skin before continuing with the rest. I realize their protocol is to give radiation doses in consecutive weeks, but maybe it could be adjusted for you. I don’t know if/how it would affect the effectiveness of the radiation.