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Just Diagnosed with Tonsil Cancer - How to Treat?

Head & Neck Cancer | Last Active: May 14 6:17pm | Replies (42)

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@russellreed

I really appreciate your comments and letting me and others know what the effects of radiation cause I have been having the shoulder pains Sharpe pains I have had three shoulder surgeries in the past and it seems that it's effecting old injuries, I'm wondering if there are any excercisees or stretching I should do to my neck as it feels hard and hot inflamed it looks swelled up like a bull frog ,and they did another pet scan my oncologist said it still shows active although the lymph nodes look better he said he didn't want to scare me that he thinks the scan was to soon and that my inflammation might be giving a false reading so he said they will wait till early July for another pet scan. I'll be reading all the info you put out and once again I thank you for what you are doing here it is so encouraging hereing from someone who's been through this and is giving real information of what you've been through and what might be expected it takes a caring person to do what you are doing I look forward to every post

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Replies to "I really appreciate your comments and letting me and others know what the effects of radiation..."

An early PET scan often shows scar tissue as cancer when it is not. Even after years that can be the case, but if they continue to compare scan to scan they can get a better idea as to what is real and what isn’t. PET scans are useful to help with diagnosis but they are not the final word nor should they be.
You sore muscles are very common after radiation. Many people including myself experienced nerve pain, twitching, and numbness for several years. The fact that you are working a physical job although difficult, is probably a good way to keep in shape and help heal, tough as it can be some days.
I traveled for work. When people I met saw my red neck and face they formed an opinion about me that led to incorrect conclusions. I let them talk stupid for a while and if it would persist, I would then tell them about radiation treatments which would shut them down in a heartbeat.
You will probably worry that every little thing not normal is a return of the cancer. Most likely it is not. It’s normal to feel that way for a long time.
It’s also ok to see life differently after your experience. How can you not? You have earned a second chance. The healing over the next two years might at times get you down but eventually you will get back to something close to where you feel great again. The healing from radiation damage takes a lot longer than a broken bone or a sunburn, a lot longer. Be patient along with the courage you have.