← Return to Talked to hepatologist re: abnormal MRCP

Discussion

Talked to hepatologist re: abnormal MRCP

Pancreatic Cancer | Last Active: Apr 16 5:54pm | Replies (22)
Comment receiving replies
@silver182

The only thing I can think of is to make sure that your gastrointestinal doctor has the most experience you can possibly find. Biopsies with the next MRCP would be a good thing, I would continue with that until something is discovered. Send whatever biopsies or portions of those to Johns Hopkins they know what to look for. Keep me posted as to what is discovered.

Jump to this post

Replies to "The only thing I can think of is to make sure that your gastrointestinal doctor has..."
sb4ca | @sb4ca | Mar 29 8:25pm

Thanks for your advice. I really mean it. There is literally no one I can talk to about it and certainly not a person who knows anything. Not having a specific point contact outside of my liver doctor who books months and months in advance doesn't help with the anxiety part lol. But I'm loathe to seek outside help because these doctors are likely the best in my area. I made an appt with my GI doctor to talk about the symptoms I'm having and also because the UCI doctor told me I need to be tested for pancreatic enzyme deficiency. I'm hoping I can off load some of this to get his viewpoint. Also will talk to my PCP who in the past hadn't hesitated in reaching out to my hepatologist. So thanks again, and I'll keep you updated!

VIEW AND REPLY