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Talked to hepatologist re: abnormal MRCP

Pancreatic Cancer | Last Active: Apr 16 5:54pm | Replies (22)

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@sb4ca

I can hardly imagine asking them to make sure they take a biopsy. But I am starting to wonder about the guy who does the EUS/ERCP's at the University. As I said, I'm at a teaching university in CA. So if you've heard of UCLA, UCSF University Medical schools, I am part of that. The doctor who did my last one is the same who is doing the next one. My last EUS/ERCP was virtually normal last summer. No cysts nor calibration of 5mm+ duct dilatation that repeated MRCP's are showing. Surely two radiologists didn't over qualify what the MRCP's are showing so that makes me wonder about the EUS/ERCP interpretation or what was or was not visualized. I have been doing some research through PubMed on the success rates of both of these tests to identify abnormalities and obviously nothing is 100%, but EUS is rated as the better test. I'm also wondering how far I should push to get the EUS/ERCP moved up. Without having spoken to any doctor, the University called to schedule it in July. But when I finally did speak with a doctor (not mine), he said he thought it should be moved up and he would try to see if that was possible. Four months is a long time to wait.

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Replies to "I can hardly imagine asking them to make sure they take a biopsy. But I am..."

I started out at Hoag Hospital in Newport Beach, CA, but I’m now at UCLA now that I’m at stage 4 pancreatic cancer metastasized to liver with lesion(s). I get my chemo at the Irvine chemo facility, but I also have video calls and my original consultation for stage 4 is with Dr. Zev Wainberg with the pancreatic oncology dept. at UCLA and I find him very knowledgeable.