← Return to Thoughts on Prolia?
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Osteoporosis & Bone Health | Last Active: Jun 7 1:45pm | Replies (45)
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Replies to "Yes, but it is so rare. It's such teachery getting off Prolia. What will you do?"
The elevated liver enzymes from late Sept. and a CT scan from Oct. pushed us to look at the liver, and I have now been diagnosed with congenital Caroli's Disease. Have never had any symptoms of that, nor had I even heard of it until December last year. Now I'm waiting to be evaluated by a gastro/liver specialist, but getting an appointment in a timely way is ...well, forget it unless you're desperately ill. Mayo wouldn't accept my Aetna Medicare Advantage PPO, so I needed a 2nd referral and am now waiting for them to call to schedule an appointment. In the meantime, I found a couple of studies that implicated Prolia for elevated liver enzymes. My PCP and gastro won't discuss this in depth...they just keep saying "it's so rare. " I asked if I should get my now over-due injection of Prolia or not...and I can't get a definitive answer from either doctor. Initially, my gastro discouraged getting it until I had seen the Dr. at Mayo, but that can't happen and we're back to the beginning waiting for an appointment with another liver specialist. I'm wondering if I need to see an endocrinologist to manage my osteoporosis, instead of leaving it up to my PCP. Such frustration!