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Pole mutation endometrial cancer lvsi

Gynecologic Cancers | Last Active: Mar 31 5:05pm | Replies (5)

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@naturegirl5

@ald7519 Hello and welcome to our Support Group. Your initial post shows you did a lot of research. Hearing the word "cancer" is a huge shock. When I was diagnosed with endometrial cancer I got lost on my way home from my gynecologist's office by making a wrong turn on a very familiar route. I found myself in a neighborhood I didn't know existed and I live in a rural area where I thought I knew every town and neighborhood.

@blanchette raised some excellent points including you are the only one who can decide what treatment(s) you want to pursue along with the recommendations from your cancer care team. You are on the "right" track by questioning the treatment recommendations and figuring out the best course for yourself.

Did your oncologist tell you whether your "case" had been discussed at their local tumor board. This is a case conference where the specialists such as oncologists, pathologists, radiation oncologists, and gynecological oncologists get together in one room and discuss their patients. It's a collaborative approach where they will come up with recommendations.

Did you get your second medical opinion at a different medical center. Are you currently getting your care at a practice that is part of an academic medical center? For instance, Mayo Clinic fits this designation as does UC San Francisco and MD Anderson.

This is the website where you can request an appointment with Mayo Clinic at any of the locations (Minnesota, Arizona, or Florida):

-- http://mayocl.in/1mtmR63

Here is the list of the National Cancer Institute Designated Cancer Centers:

-- https://www.cancer.gov/research/infrastructure/cancer-centers/find

When is your next appointment? Will you see the first radiation oncologist again?

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Replies to "@ald7519 Hello and welcome to our Support Group. Your initial post shows you did a lot..."

This is absolutely gold standard advice. The only comments I would add is do all of this quickly and do not be guided by insurance concerns or if in a public health system what the health authorities would dictate. It is your life and a second opinion from the most advanced sources of knowledge is not that expensive in the grand scheme of things. We often do not hesitate to spend on anything from vacations to home renovations but somehow draw the line when it comes to our health. If we are inclined that way we need to get over it. There is a very wide range in the quality of cancer care and if something doesn’t seem right or feel right search out the alternatives. Good luck and best wishes.