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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 7 hours ago | Replies (7052)

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@nicolemramirez

Hi I’m hoping to get some answers or find out if anybody else has had these issues. My boy friend has chronic severe pain issues in his abdomen. He’s had endoscopy and colonoscopy and nothing has ever come up as a culprit. We are hoping to get the pill cam done , that’s one thing he’s never had done and it would look at the small intestine, he’s suffered for ten years now, he’s medically released on disability with the army because of this. This pain makes him unable to have a job, the pain comes often with eating. It’ll hurt so bad he throws up, and that can happen for days at A time all day once it’s activated. We’ve tried avoiding certain foods but have realized it’s not food related and he did a stomach emptying study so we know it’s not his stomach ( actually want the gi to explain better to us) but we have no answers. He’s lost 30 lbs recently cause he’s scared to eat anything and half the time throws it back up. This has caused severe mental distress in him since it’s been ongoing several years, he’s now been diagnosed schizophrenia just this year. I truly believe it’s cause of the constant trauma he’s in with his abdomen pain, and a recent custody battle where his toddler no longer lives in the same state. We keep going in circles with doctors and being a veteran that system is very broken ( for instance he’s been waiting for a colonoscopy since last summer , it kept getting rescheduled until March) and his Va primary left so he’s been trying to get help for pain but now he’s waiting for a new doctor and they schedule several months out. So he finally broke out the Va system for a new gi doctor and we’re doing the steps but he needs help now. He is pale, shrinking, and I’ve noticed his teeth look yellow, I think from throwing up so much bile:( it’s terrible to witness and I feel like I’m watching somebody die. His only relief for pain is a heating pack so he’s used this one that you microwave. The stomach pain is so severe he has burned his skin with the heating pad and now that’s a problem, he has burns on his stomach and back where he puts the pad but he says he doesn’t even notice it over the abdomen pain. We’ve recently got him a new electric one but he says it doesn’t get hot enough. I’ve taken him to the hospital 6 times or so to get him fluids and I’ve seen him be on delauted, morphine and oxy app at once, still with a pain scale 7. What can this be? And no he’s not on opioids, he’s afraid to even take Advil cause it hurts his stomach. He says whatever this feeling is, it feels better to throw up and try to push this feeling out. He says he feels a pop in his lower abdomen. A couple times he’s been given oxy to go home with but we want a fix, not more drugs. Sometimes he gets treated like he’s drug seeking and in reality the last thing he wants to do is go to the hospital. So basically he needs an advocate with him every time. He flared January and it’s been really nonstop lately where he basically lives in a hot bath all day or under the heating pad. I’ve seen him go from perfectly normal havinga good day at the lake to throwing up as soon as he eats something. And he’ll sweat through his whole outfit in this pain response. What can this be??? 🙁 please any help.

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Replies to "Hi I’m hoping to get some answers or find out if anybody else has had these..."

God Bless You! Has he been checked for Chron's? Praying for answers for him. I am so sorry he is battling this. Hugs & Praying right now....

@nicolemramirez
Has your boyfriend had bloodwork and ultrasound or CT done by his gastroenterologist? Has he had a HIDA scan of his liver and gallbladder to check how it is functioning? I had endoscopy which showed esophagitis and gastritis so they put me in omeprazole. This was due to taking too many NSAID pain relievers for too long. The HIDA scan showed my gallbladder wasn’t functioning (biliary dyskinesia). This can cause pain across abdomen under rib cage from stomach on left to liver on right. This pain can be triggered after eating. Has your boyfriend had his gallbladder checked (gallstones or dysfunction) or did he have it already removed?

@nicolemramirez
Has your boyfriend gone to a dermatologist to ask what could be done to treat his skin on his stomach and back? It looks like his skin is burned and may need special treatment. I don’t think the heating pad is a good idea because heat would not help GI issues. Abdominal pain is below the skin surface and does not seem to be tied to muscle soreness in his abdomen if he gets pain after eating. Heat on surface skin would not help his stomach, gallbladder or intestines.

I have had genetic testing for Celiac Disease. Being gluten and lactose free for quite a few years, has been a real help. Recently I have been dx with silent reflux, laryngealesophogeal GERD, which limits my diet further. It beats dealing with reflux. It sounds like you both may have to do your experimenting diet wise like introduce one food at a time until you hopefully find something that's doesn't cause a bad reaction. I am sorry for what you both are dealing with. It isn't easy I know. Prayers for healing going up.